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Welcome! Often when you or your loved one is faced with a diagnosis of
dementia, it can feel as if you are completely alone in this battle against the disease, and its
ensuing symptoms.
We're here to tell you, however that you are NOT alone!!!
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Millions of people across the globe are going through the same experiences you are going
through, some are years ahead, others years behind, and also many are also at the same stage in this disease as you
are.
As a result, there is so much you can learn, so much assistance available if you know where to
look, and many, many new friends that you can make, who can offer practical advice or just an understanding ear to
listen when you need it. You can find these people in your local community and online.
For some examples of where you can go to find such people, see below.
In most cases, Alzheimer Associations and Societies also provide support for people dealing with other
dementia causing conditions, there are however also a variety of other support groups and networks not
specifically Alzheimer's focussed:
Dementia Advocacy & Support Network
International U.S.Frontotemporal Dementias Assoc
U.K. Pick's Disease Support Group
U.S. FTD Caregiver Support
U.S. Lewy Body Dementia Assoc
U.K. Lewy Body Society
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Dementia Forums: An internet forum is
an online discussion board, where you can post questions, read about other's experiences, share
your own and get feedback. To participate you must register as a member so that you can post
messages and
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send and receive private messages from other members or you can choose to post publicly and read public posts.
The most popular online dementia forums can be found at the links below:
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